We are pleased to announce the launch of the EHE Global Patient Registry, a collaborative effort between The EHE Foundation and The National Organization for Rare Disorders (NORD®) to study epithelioid hemangioendothelioma (EHE). The EHE Global Patient Registry is a powerful opportunity for people with EHE around the world to raise their voices, share experiences, and to contribute directly to research.

The EHE Global Patient Registry will bring the EHE community together to advance knowledge about EHE. The registry aims to develop a global and long-term database and resource on this rare cancer. We invite people diagnosed with EHE from around the world to contribute their information and help advance EHE research. Combined, de-identified data contributed by registry participants will answer important questions and serve to better understand EHE, while supporting other research efforts and identifying new research opportunities.


To learn more, go to www.fightehe.org/registry. For additional information about the registry, or to join please contact: [email protected] or call 1-877-460-4240.